Designwala

Empowering the deaf child – Vaani

by Ria Rajan

VAANI is an organisation that works to empower the deaf child. Its role is to act as a catalyst. Rather than delivering services, VAANI supports the development of accessible sustainable services for deaf children and their families whilst working closely with the overall development strategies of the country. VAANI works with local organisations to build on existing good practices to develop a resource base and understand what works for deaf children and their families in India.

In conversation with the Founder Director of VAANI - Brinda Crishna

RR:  So what’s the story of VAANI? How did it begin?

BC: VAANI was started by me after I had done a study which showed that although services for deaf had existed for over 150 years, it only catered to children who had already grown up and there was no understanding of childhood deafness or the role that parents played in the healthy development of their children. There was no communication as parents did not know how to communicate and children did not know how to express themselves.

RR: Who are the stakeholders of VAANI?  And who are the partners at grass root levels?

BC:  The beneficiaries are families of deaf children, deaf children themselves; community workers and other professionals including teachers. As far as the partners go – small NGOs who work at field level, possibly in community development projects or community based rehab projects.

RR: So VAANI’s services aren’t location specific. It is made available anyone who needs them? Vaani uses existing infrastructures to provide services? VAANI has designed a programme/services that can be emulated by smaller communities/NGO’s etc

BC: Yes and builds the capacity of the local NGO to carry on even after we are not there. The logic behind our model of work is that it addresses the issue of providing quality services to the thousands of deaf children who have yet not been reached, is cost effective, remains an active learning situation for both parties as VAANI and its partner NGO, build on each others strengths and ensures ownership and sustainability of the work. We have developed a whole lot of needs based training material and training curriculum to meet local needs. All our stuff is available in the vernacular.

RR: So does VAANI ever approach a group/NGO/community? Or do they come to you? As in – does VAANI identify a community that needs an intervention or does another smaller NGO approach you first for the liaison?

BC: It works both ways. The thing is that we are careful to choose our partners as there are a lot of organisations that work in the field who still believe in very traditional means of teaching or developing communication in the deaf child. What makes us unique is that we are the only organization in India that focuses on childhood deafness and believes that parents and children must learn to communicate in whatever means works for them; and that parents have the right to make decisions about the future of their children.

RR : But isn’t that the case with all parents? They have the right to make decisions about the future of their children? How is this any different?

BC: When a child has a disability then you allow the professionals to take over because you don’t know what to do. Most professionals in the deaf sector in India still suggest therapy and speech as the primary mode of communication for deaf children, but the reality is that communication is about connecting and understanding. Speaking requires very high quality hearing aids, which has to be given at the right time. Most children are diagnosed very late because deafness is an invisible disability and by the time parents realise their child is deaf, many of the language learning years have passed.

Fundamental to VAANI’s vision for deaf children and their families is the principle of informed choice. We believe that deaf children need to develop fluent language skills in order to understand and influence the world around them, by whatever means is the most appropriate for the individual. Deaf children do not gain access to language in the same way as hearing children. It is therefore very important to ensure that the means are available for deaf children to learn to communicate and that families receive clear and balanced information to help them make choices that are best for their child.

RR: (feeling rather foolish about the previous question) Right. Which is why the parents need to be educated about the possibilities like sign language etc. Why is it hard to identify deafness in a child? Are there non-medical methods that Vaani has developed to help identify child deafness?

BC: Because they look normal and many can hear a little or some sounds. It’s also because in India most parents don’t have long discussions with their children. Parenting revolves around nurturing, and often the child get by initially by using basic gestures. Yes there are definitely non-technical methods; VAANI has not developed them but we do use them to train community workers especially in urban slums and rural India.

RR: Since its inception 5 years ago, how far has VAANI come?

BC : Well, VAANI has worked in Karnataka, Gujarat, West Bengal, Assam, Meghalaya, Mizoram and Maharashtra. In these states we have provided services to over 1000 deaf children and families, conducted training courses and sensitisation meetings for teachers, Community Based Rehabilitation (CBR) workers and families. Along with this we have conducted seminars on emotional and social needs of deaf children and their families.We are partnering with the government to provide training to teachers so that they can improve the quality of education of the government run deaf schools and are supporting an NGO to set up an early intervention programme for young deaf children.

RR : Thank You, Mrs. Crishna for taking the time to engage with me. It was a pleasure talking to you. I wish you all the very best with VAANI and its endeavours.

For more information you can visit – www.vaani.in